Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Wednesday, June 29, 2005

Wednesday, June 29, 2005 3:37 PM CDT

Nathan's surgery went fine. He had a bit of trouble afterwards being quite nauseous and throwing up so we stayed in recovery for a while. He is a little sore but no big deal. He is currently playing and just a little bit tired and emotional.

He is definately worried about what the tumor means for him. He asked me what would happen if they didn't do chemo and he also out of the blue started asking questions about what people look like in heaven. When he went to his babysitter yesterday the first thing he said to her was that he has another tumor.

Tomorrow around noon we will hook him up to fluids to hydrate him for chemo. He has a little backpack he can wear so he can still move around the house with it. Friday he will go to the clinic and then over to the hospital to start chemo.

My sonogram went OK. This little baby is laying facing down on its knees with its head down to knee level. So we could not get a look at its face and we could only see the heart through the back and so not a clear look at its anatomy. All its measurements were right on track and the parts we could see looked good. When I go back (in 4 weeks or whenever we get back from NYC) they wil do another one. We did not find out the sex even though with its bottom in the air it would have been really easy. Makes me wonder if it is a girl if we didn't even see anything accidentally. It was really fun to see the baby and it was pretty sweet laying like that. Julia slept like that for a few years and we still occassionally find her asleep on her knees with her bottom in the air....very cute.

I will most likely update again on Friday.

No comments: