Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Monday, March 21, 2005

Monday, March 21, 2005 12:58 AM CST


Well - we went in this morning for an MRI and xrays. We wanted to do it without Nathan being sedated but the radiologist was really against the idea so we let them sedate him. In the past he has been in an awful state after sedation - but today it was pretty mild.

I expect a call later this afternoon from his doctor to let us know the results. Who knows if this tets will give us any results or just lead us to finally do bone marrows - which will really give us the answer.

We had a good day on Sunday. We went to church as usual and had a normal family day. Nathan's leg still hurts - but it is mild and is not keeping him from playing.

I will update the page later - though I don't expect any kind of definitive answer from just an MRI.

************************************************
Update but no update - 7:00 pm

No phone calls from the doctor today. Nathan's leg has been mostly fine today, bus as is the pattern - it was bothering him right before bedtime.

I assume we will get a call tomorrow.

We will continue with our day as planned tomorrow The kids are going to the sitters where they will have a birthday party and do crafts. There is a little boy there this week (spring break) that Nathan really likes and so they should have a fun day.

I am assuming that Nate may still ahve more tests and procedures this week.

I have a feeling that if this is relapse it is going to be somewhat a different experience in that people might not we as willing to do things as urgently for him. There might need to be more pushing from us this time.

Anyway - I will keep the journal updated as I hear anything.

Thanks for your emails and guestbook entries.

*********************************************


No comments: