The bone marrows went fine yesterday. Nathan is such a trooper. I told him the night before about it and that when he woke up he could have apple juice and jello. He was excited about that. He was excited in the way that I knew it was his coping mechanism. We could learn a lot from him.
He did fine with the procedure and was only moderately cranky upon wakening. He always finds something to fixate on and get upset about and this time his milk didn't taste right. We finally got to leave and went and got him a toy (it took 3 pokes to place his IV and so he was owed one!) ad then we picked up Julia and went to Red Robin for an early dinner.
The bone marrow should be looked at this morning. The bone biopsy takes a few days to prepare and so those results will not be available today. We could find cancer in both, one and not the other or neither.
Luke talked to Nathan's main doctor on Monday and got a few questions answered. The reason they wouldn't do the MIBG scan this week, was that basically, they feel there is no point in doing it if he has relapsed.
Now, we know that long-term survival for relapsed stage IV neuroblastoma is about 0� However, we have been around the NB world long enough to know that with some not so horrible treatments, kids with a relapse can often survive for several years with good quality of life. So - in our minds there would be no reason to give up. We also know there are lots of doctors around who think that way too. Most of these are research doctors who see these kids. So - I guess I am not surprised his local doctors feel the way they do - but I am disappointed. I certainly hope they will agree to provide support services to Nathan, should he relapse and get treatments elsewhere.
So - now we wait for results.....Please keep up those prayers for clean bone and bone marrow!
p.s. check out the photo album page
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Update (3/30 4:36 PM MT)
Luke here. I just got off the phone with Nathan's doctor. Predictably, the other doctor had to be out of the office today so he did not get to the hospital to review slides with the pathologist. So, we have another day of waiting on bone marrow results. We are still seeing other test results tend to be good. They reran his blood labwork and the more accurrate indicator of non-specific inflammation was normal. It had been elevated when he was having his hip pain. His counts are also all very normal (for Nathan anyway), which is a good sign. So, we just keep waiting and hoping. I know many of you have been checking frequently today and we thank you for your continued thoughts and prayers.
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