Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Friday, November 4, 2005

Friday, November 4, 2005 7:12 PM CST

TGIF!

Nathan went to the clinic today. Luke met us there since it has been ages since he has been. Nathan's counts were good EXCEPT platelets. We just have to hope they do not go so low he will need a transfusion. With him starting chemo with them on their way down there is no telling what they will do.

We got to hash some things out with Nathan's doctor. He had not gotten to talk to Nathan's NY doctor but had just received an email from him asking how Nathan is doing and what his status is. So - he will respond and we will see what the status of the Vaccine trial is. We decided that Nathan needs to be scanned so we can start to compile a list of treatment options for him. We will wait until the first week of December so we are not scanning as we wait for the baby to come. It is going to be difficult to figure out what to do next. Nathan's doctor commented that everyone feels better when there is treatment going on - but at the same time you have to be selective about it and there has to be an end point. So - I guess we will see about the trial and see what scans show and go from there.

Nathan had chemo in the clinic today and we decided not to give him his last dose of oral chemo tonight based on his platelet counts. Luke stayed with Nathan at the clinic. Nathan definately enjoyed having his Daddy with him!

The only other thing going on with Nathan is a cold - but he is handling that fine and still has plenty of white blood cells to fight it.

I also went to the doctor today. I had gone on Tuesday afternoon and was feeling cruddy. I was flushed, dizzy and my blood pressure was quite high for me. So - they took some blood and told me to take it easy and to come back today. The next day I came down with a nasty cold which explained why I was feeling so bad. Today my blood pressure was much better and my bloodwork was fine. I haven't been able to sleep much and my cold is making this end of pregnancy harder - but all is well pregnancy-wise so that is good! I am due in 20 days.

Nathan goes back to the clinic on Wednesday to check counts and to the ear doctor on Thursday. I go back to the doctor on Thursday as well.

We have no big plans for the weekend - which is good since Luke and I are both exhausted.

That's about it I think....I will update again on Wednesday or sooner if anything changes.

at the clinic - infusion area

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