Hello! I hope you all had a wonderful Thanksgiving.
I meant to update many days ago. I find the only time I am using the computer is when I am nursing Lauren and have only one hand so I can't type.
We had a very nice Thanksgiving. My parents arrived last Monday and are still here. My brother and his family drove down for the day and we had the usual Turkey fare.
Nathan is doing well. He went to the clinic last Monday and we found his counts to be at their usual position after this chemo. His platelets are low but not at transfusion level and his ANC is 700 - which is a low immunity but not so low he can't go places. His hemoglobin is actually pretty good and he is no where near transfusion level. The medication we have Nathan on seems to have healed his bowel problem and he is doing a great job taking it - especially being woken in the middle of the night to take it. He goes in for counts again on Monday.
We got an email from Nathan's NY oncologist wanting to know his status. January is the latest word on the vaccine trial opening. We are hopeful that this time frame will actually come to be. Of course - we need to get through his upcoming scans first. We need those scans to not show any disease or at the worst very minimal disease. It is frightening this time because we have NO CLUE what these scans may show. There could be anything going on inside Nathan right now and we will just have to see what they show.
Nathan has good energy these days. He has been practicing riding his bike and has made big strides. He has fallen several times and is not getting upset about it and getting right on. Don't get me wrong - he still has training wheels. His gross motor skills are something that he lags in. It occurred to Luke and I after one of these sessions that bike riding with low platelets is not the best thing medically - but best for Nathan so we are not going to worry about it.
Lauren is doing great! She has been a little jaundiced but getting less yellow. She had gained almost all of her birthweight back by day 6 and so her doctor was very pleased. She is sleeping in good chunks at night so I am getting up with her twice - which is not bad for 10 days old. She is such a doll! I am enjoying having a newborn so much. Nathan and Julia are still very happy to have her and are always checking on her and wanting to hold her.
So - all is good around here...
Thanks for checking in.
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