Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Monday, June 23, 2003

Monday, June 23, 2003 8:24 PM CDT

Susan here....

Good news today - Nathan's stem cells are clean! It is a big relief to know we don't have to try to harvest again. It doesn't neccessarily mean his bone marrow is clean. They will test that in the next few weeks.

The CT scan of Nathan's sinuses showed that he has sinusitis - all his sinuses are filled. No big surprise there. It also showed no visible bone damage from tumor or any other abnormality in the area which is a big relief. He is on an antibiotic since the sinus area being like that is a big risk for infection. I need to ask the DR some more tomorrow what might be done for the sinusitis itself.

Nathan's white blood cell count is now low as expected. His red blood cell count was very low and so since he needed them today he had to go to the hospital to get a transfusion. He wasn't happy at the idea but did just fine when we got there. We ended up being gone all day and he was pretty tired tonight. He will get a platelet transfusion tomorrow at the clinic. His eating and drinking is not great, but he sustained his weight over the weekend so we will just keep an eye on him.

Pictures from the weekend:

DCP_1746 DCP_1743 DCP_1733 DCP_1736 DCP_1740 DCP_1742

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