Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Thursday, June 26, 2003

Thursday, June 26, 2003 5:13 PM CDT
Susan here...
Nathan had a red blood cell transfusion today. His white blood cell count is down to zero and he is feeling crummy. For the second time in a row his blood didn't arrive at the clinic as scheduled and we had to hang around an extra hour. Exactly what we didn't need today. So we were there from 11 am to 3:30. Between three days of chemo last week and three transfusion this week I have spent way too much time hanging around watching IV pumps count down. Fortunately he won't go in tomorrow. His regular doctor was out. The other doctor isn't quite as conservative and thought he could wait until Monday for a platelet transfusion. I am very grateful for that.
Nathan used to be very independant and play by himself alot. Now he expects people to be playing with him constantly. I guess he has gotten a little spoiled. I can only take so much of playing at a time and then he screams at me to play with him. I feel bad since he can't play with his friends very often so I try to do what I can. Fortunately his grandparents have been doing a lot of playing. It is tiring.

No comments: