Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Tuesday, June 24, 2003

Tuesday, June 24, 2003 8:45 PM CDT

Susan here..

Nathan went in for a platelet transfusion this morning. Someone forgot to order the platelets and so we had to hang around until they could get them. He fell asleep while we were there and so was quite cranky when I woke him up to go home.

Even though he had a blood transfusion yesterday he will need another on Thursday. He will likely need another platelet transfusion on Friday. So basically tomorrow is our only day off from transfusion. Since his immunity is low we will be hanging around the house.

DCP_1751

Nathan and Julia have been playing a lot in the backyard. It is now equipped with a playhouse, slide, and sand and water table. Also an umbrella for the adults. It has been great to be able to entertain the kids out back when we are stuck at home.

DCP_1730 DCP_1725

Nathan is big into asking "why" these days. Today he asked his doctor the classic question "why is the sky blue?" His doctor actually had a good answer for a 3 year old - I wouldn't have had a clue what to say.

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