Susan here
We went in for blood counts this morning at 9:30. Nathan's counts are finally up and he is free to go out in public! While we were there we hashed out Nathan's test schedule and decided we had better try to schedule the CT scan today. It worked out to schedule it for 2:0o pm. While we were still at the clinic one of out favorite nurses frm the hospital called the clinic to tell them that the construction workers had sent up some toy trucks for Nathan to have. So we went to the hospital to pick them up. It was a very nice set of Caterpillar road building trucks. Nathan was very excited and the nurses were so happy so see him react that way. They really are great over there.
We went home and I went to get the oral contrast solution. We had to give him the contrast at home prior to gettin ghte scan. HE didn't want to drink it but did really well in then end with a toy as the incentive. He was so great during the CT scan and wasn't scared. After the CT scan he had a chest XRay and he did really well with that too. We are so impressed with him. We went for some ice cream afterwards.
He had a rough late afternoon. His bowel movements are so painful and he was having problems and so he spent several hours screaming every few minutes. Poor thing. He went to bed a little early and we gave him some tylenol with codeine. Hopefully he can get some sleep.
He goes to the clinic for counts Monday morning and has a hearing test Monday afternoon. On Tuesday he goes in the afternoon to get an injection (done through IV) for the radioactive isotope that he needs for his MIBG scan on Wednesday (at 9:30). He might also have another scan on Thursday depending on how the Wednesday scan turns out. The MIBG scan is a nuclear medicine scan in which the radioactive isotope attaches only to active neuroblastoma cells. As the scanner passes over the cancerous cells "light up" on the scan. It will be kind of nerve-wracking because we can see the monitor showing the scan as it is happening so I am sure we will be squinting at it from afar to see if it is lighting up.
He will also have a bone marrow aspiration sometime next week. We will figure that our on Monday. We might also know something about the CT scan on Monday. As usual we will not be holding our breath. We are hoping to get a consult with the surgeons about it by the end of next week.
All in all we are happy we got started on the scans today. We will hopefully have a fun weekend not being stuck at home!
I hope you all have a good weekend too!
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