Susan writing..
Well - we had a surprise long day, a truck encounter and also some good news.
First the good news...Nathan's doctor FINALLY got to look at his bone bone/marrow sample slides. He saw about 4 cells that looked abnormal. He didn't think they were probably even active neuroblastoma cells since NB cells like to clump together and these were isolated. He thinks at most there is way less than 1% cancerous cells and he really things there is no active cancer cells at all. They will do a chemical test on the bone marrow they take next week to see what that says. Nathan's tests are not scheduled yet; pending insurance authorizations, but we will hopefully know tomorrow when they will be.
Now for the truck encounter...
I took Nathan in to the clinic at 9:00. The receptionist had arranged for a fire truck to visit and so after having his blood drawn he and 2 other 3 year olds went outside to see the fire truck. Nathan most enjoyed the flashing lights. He was intimidated and was scared to sit in it. I finally got him to do that but I couldn't convince him to take a ride in it. He had fun though.
As for the long day...
Nathan's platelets were very very low. The hospital had a shortage of platelets and said he would have to go there to get them and that they would not be available until later. His red blood (hemoglobin) was also low and since we had to go to the hospital anyway we decided to do those as well. Unfortunately the hospital has a new policy that same day red blood cell transfusion done there also have to be type and crossed at the hospital (we usually do it in the clinic). So after the fire truck we ran over to the hospital and did the type and cross. We had to register and wait and all that. Then we grabbed McDonalds and went back to the clinic to just wait around there since he still can't be out and about and I didn't want to take him home in the interim. At 1:00 we went back to the hospital (after a pit stop at walgreens for a toy) and had to go through registration again and wait around. We finally got up to the room at about 1:30 and he began to be transfused at about 2:15. Luke came at 5:30 when he was done working and I left around 6:00 to go home and see Julia and put her to bed. Luke and Nathan arrived home at 7:30 and Nathan went straight to bed. Tomorrow we have nothing scheduled so that is good for him. His white blood count is up to .4 from .1 so we are getting somewhere. That is still very low but moving in the right direction.
My vent for the day (which I alluded to above) is that his hospital can't seem to keep all Nathan's info in their system. I am so tired of giving out Luke's employment information, etc. every time we register. I thought this was supposed to be what computers did. We are thinking of writing a letter to the hospital.
So back to the clinic on Friday for blood counts!
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