Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Sunday, August 17, 2003

Sunday, August 17, 2003 8:25 AM CDT

Luke here. Saturday was an okay day. Susan and Julia spent the day together and Nathan and I spent the day at the hospital for transfusions. On Friday we were surprised by how low his counts were so close to transfusions. We had some options to either go ahead with red blood cell transfusion on Saturday or maybe wait. We decided to transfuse yesterday and I'm glad we did. His counts had continued to drop drastically and he really needed the blood products. He got red blood cells, platelets, and some antibiotics. We were there from just before 9am until 5pm. He did really well and was in pretty good spirits all day considering. His red blood cells were low enough before we started though that the transfusion will likely not have gotten him back into the normal range for long and we are expecting the need for another transfusion on Monday. That is putting us on an every other day schedule. This is likely the bone marrow/stem cell fatigue from so much high dose chemo setting in. We will drill the doctors on the reasons a little more on Monday.

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