Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Friday, September 19, 2003

Friday, September 19, 2003 11:07 AM CDT

Susan here..

Yesterday Nathan started chemo. He felt fine and Luke and I a took shifts being away from the hospital. On my shift we played for quite a while in the play room. Last night he had a pretty good night. I guess he woke up once and wanted us but the nurse calmed him down and he went back to sleep.

Today is more of the same with more chemo. He is on 3 chemo infussions. One he gets over 20 minutes for three days and the others he gets continuosly for 4 days. This morning I gave him some medicine and he threw it right back up but then just wanted to eat again. He is in great spirits and is playing and singing to himself and having fun.

We have to do mouth care 3 times a day and he doesn't like that at all. He also has his dressing changed once a day, though they might do it twice today. He really doesn't like that. It is so hard to force him to do these things that he hates and that scare him over and over again. It is really emotionally draining.

Luke and I are doing OK but are really tired. We have been leaving the hospital around 8:15 or so and then getting a bite to eat afterwards. Neither of us is sleeping very well.

If you would like to send any mail to Nathan we ask that you send it to us where we are staying and we can then clean it properly and give it to him. The address will be in the hospital information area at the bottom of the main page.

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