Susan here..
Nathan is home and doing great. Yesterday he got up to walk and had no problems. He went to the playroom to play and he was clibming on chairs. Last night was not good. He didn't sleep very much. His bowels are working again and they were bothering him and he could not get comfortable.
He was released around 11:00 today and is happy to be home.
On the news front there is quite a bit. First - the big news is that transplant is scheduled for Sept. 16. Yes - we got 11 days notice. We are glad it is happening but we have a lot to figure out (including Julia's care) in the next couple of days. No one expected it to be this soon.
Nathan's tumor was 99.9ancer free. His doctor saw only the smallest portion of viable cancer in it. We are still waiting on the bone marrow results.
This week will be filled with tests. He has about 6 or so tests to be scheduled between Mon-Thurs and then has to go to Children's hospital in Denver on Friday for some tests. The following Tuesday he checks in.
Needless to say Luke and I are very overwhelmed with figuring out preparations. We will start in ernest tomorrow.
We'll keep you updated.
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