Wednesday, September 17, 2003 10:41 PM CDT
Luke here...I'm beat, so I'll miss a lot and probably seem a little incoherent. The bottom line is that it was a pretty good day, although a very long one. Where to start? Nathan had a good night last night. He went to bed early and slept very well in the room in the apartment. He got a good 12 hours sleep. We got to the hospital and into the unit at around 8:30 am. Not much happened today. They want the patient checked in to get familiar with the unit. We will be talking a lot about the day we are on. The day he receives his stem cell infusion is day 0. Days prior to that are negative numbered days. Today was day -8. Tomorrow is day -7 and his chemo begins. Today mostly consisted of answering a lot of questions, getting to know the staff, getting measured, weighed, and etc. We could have gotten a pass to leave the unit since his chemo hasn't started, but since he will be forced to stay on the unit once things start, we didn't want to set the precedent that he was allowed to leave, so we stayed in.
I'm going to wrap things up. I'm fading fast. We were worried about leaving him alone tonight. We prepped him all day and he was upset about it when we talked, but when the time came he was more upset about putting away his toys than he was about us leaving. The nurse was reading him a book when we left and he didn't raise a fit. Hopefully this will go well. Parents are encouraged not to sleep over and there is only a recliner if we did. We will stay on nights he is really sick, but most nights we will be coming back to our apartment, which is very nice and comfortable.
We left his address and room number information back at the hospital. Sometime tomorrow we'll try and post that information.
No comments:
Post a Comment