Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Saturday, November 20, 2004

Saturday, November 20, 2004 10:14 PM CST

Hello - I didn't realize it had been so long since I had updated (thanks, Ashley for your concern).

With Luke being gone all week, we were all just trying to get through. Julia was pretty emotional all week. She is just not used to Luke being gone. I am trying to remember what we did all week. I know we kept ourselves pretty busy. On Friday we went swimming. The kids had a blast. The kid area of the pool is all 1 to 1.5 feet and has a little waterslide and they loved it. Unfortunately, Julia gets cold very easily so we cold only swim for about 45 minutes before she was shivering. Luke came home Friday night. Nathan waited by the window for a half an hour waiting for him. He actually got "sweaty and hot" waiting for him. He breaks out in these sweats and I have been trying to determine the cause so it was interesting to see it connected to anxiety. They were both very happy to see their Daddy.

We are all looking forward to the week ahead. Nathan's class has a little Thanksgiving party on Tuesday that I will attend. My parents are arriving Tuesday night for the holiday. Nathan is very happy that we will be having pumpkin pie because it is one of his favorite foods. Speaking of favorite foods, he has to bring a favorite food to the party at preschool and he chose corn. I will have to attempt to keep it a little bit warm on the way over there! It will be interresting to see what the other kids choose. His class also had paper feathers to take home and write what they are thankful for and the teacher created a turkey out of them. We did this pretty soon after we arrived home and so his two were,"that his cancer treatments were done" and "to be home with his family". It was fun to see what the kids chose. A few had their families, one had their god, and another which I enjoyed was that she was thankful for waffles.

So that is the wrap up around here. Nothing medical is happening until Dec. 2 when Nathan will see his oncologist and have his blood drawn to send to NY.

I almost forgot to say....Tomorrow is one year since Nathan's surgery in New York when the remaining tumor was removed! How lucky we are to be here a year later, done with treatment and with Nathan currently happy and healthy.

No comments:

Post a Comment

Subscribe to: Post Comments (Atom)