Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Tuesday, November 2, 2004

Tuesday, November 2, 2004 10:45 AM CST

Hello,

No pain again today, but a lot of grumpy. I wonder if he felt some , but he says he didn't. When I tried to explain why we could leave yesterday I told him that after a while he might not have pain anymore with antibodies and that he would eventually stop antibodies. I was trying very carefully not to make him think that lack of pain=no more antibodies but I think he took it away from the conversation because he told me at lunch that he didn't have pain and so he didn't need any more antibodes. Sigh... So - he may not have told me about the pain. Anyway - they drew him blood for the HAMA test so we will find out this evening. I guess I am expecting to hear it is negative. I am glad it is being run because I will know to expect pain tomorrow if it is negative and I can handle it alot better when I know what to expect.

We had a good afternoon yesterday. A friend sent him $3 (thanks Judy H.) and we went off to the toy store to spend it (he bought a taxi). After that we walked to the book store and then to the pet store(Nathan wanted to buy a toy for our doggie dinner host, Fergus) and then to have dinner at John and Judy's with Joan and Bill. Nathan WALKED all of this- we had no stroller. The walk was around one and half miles. I was very impressed with his stamina and his desire because he wanted to walk at one point when I offered the subway.

We had a wonderful dinner and came home and went right to bed.

We may go to Times Square this afternoon. I promised we would do it while we were here and since there is a good chance tomorrow and Thursday could be bad pain days I think we wil do it today.

Keep your fingers crossed for the HAMA results. I will update late - she promised to call with the results either way.


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5:11 EST
HAMA Positive! Nathan is DONE with treatment.
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