Hello -
We had a wonderful weekend. I will back up to Friday first.
Nathan's pain was somewhat less than Thursday but still pretty bad. We were trying to catch the train at a particular time and so as it got later I was trying to convince him to leave the hospital but he didn't want to go and was upset about that and then wanted his Halloween costume off but wanted to go outside with short and a t-shirt. She we had a big struggle getting him dressed but he calmed down fairly soon and we caught a taxi and got to the train station and were on out way. We spent Friday afternoon at Garrett's house and then went to a little Halloween parade where the kids dressed up and paraded from the fire station to the elementrary school. Nathan enjoyed that mainly because we were all waling behind a fire truck.
Saturday we went to a pumpkin patch and picked out pumpkins and then we went to Garrett's sister's soccer game. It was cold and wet but the boys enjoyed playing at the playground nevertheless. Later in the afternoon we carved pumpkins.
Sunday we had another soccer game and then dinner and tick or treating. Nathan didn't trick or treat for too long but he had a great time and afterwards sorted and lined up all his candy and was very pleased about it all.
We caught an early train this morning and came back to the city. Nathan had a great time playing with Garrett and just quietly playing on the floor with trucks in such a nice homey atmosphere. He told me he loved being there and was sad this morning to leave. I also had a great time hanging out. They are a great family.
Today it took 4 attempts to get an IV started. Nathan was obviously upset but did a great job. Once again there was no pain or hives. I think they may go ahead and draw his blood for HAMA tomorrow but I am not sure. There is a good chance he will do what he did last week and get pain tomorrow or Wednesday. Either way, I will take any pain-free day I can get and so it was such a relief today. Nathan is now playing in the hospital playroom after having lunch. He never gets to play there because he is too wiped out after his treatments. **I am adding a little here an hour later because after I wrote this Nathan came to get me and wanted to go back to his room. He meant his hospital room. I told him we were done and he got upset and said he didn't have his pain yet so we couldn't go. He wouldn't belive me so I had a nurse tell him. Last week he told me he still had pain on those days but today I guess he truly had none. **
I will try to put some pictures on later.
Julia and Luke also had a good Halloween. Apparently at every house Julia went to she kept saying to the people after she had her candy "and some for my Daddy too?" He had to tell them he didn't coach her to say that!
Gotta go - will update later
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