Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Friday, December 31, 2004

Friday, December 31, 2004 5:42 PM CST

Hello - I hope you are all set to have a wonderful New Years Eve.

I am updating because the scan schedule has imploded and we had to start again.

I got a call yesterday afternoon (after the clinic was closed for the holiday) from nuclear med saying that due to the holiday the MIBG isotope would be unavailable Tuesday.

I paged Nathan's doctor and he was going to look into finding a different day for the Bone Marrows. Well - so this is what we have ended up with.

Tuesday - nothing now.

Wednesday - Clinic visit to insert IV and blood draw and MIBG injection.

Thursday - MIBG scan in the morning. They will look at it right away to see if he needs a repeat scan on Friday. If not, he will have the CT scan on Thursday afternoon as planned.

Friday - If needed, second MIBG scan and rescheduled CT scan.

Next Thursday (Jan 13) Tenatively....please hope this works out! - Bone marrow aspirations and biopsies.

So - it will have to be done with 2 IVs - which I was trying to avoid. That's the way it is though.

The bone marrows just could not be done this week. I have picked the next Thursday because the kids are starting swimming lesson on the 10th and I didn't want Nathan to have to miss. Plus he can't get wet for a few days following.

I am excited about the lessons. Now that Julia is turning 3 and Nathan is still 4, they can be in the same class together and without me in the pool.

Now - I am jsut hoping for no repeat CT scan...the IV can come out a day earllier and the kids and I can go to a swimming playgroup we have been wanting to attend on Friday.

More importantly, I am hoping for CLEAN SCANS!

Happy New Years!

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