Hello,
We finally have scan dates. Unfortunately my anxiety level is at an all time high anticipating these scans. Nathan has been very tired lately which makes me nervous. It is also the first scans off-treatment and would be so devestating for him to relapse now.
The schedule also, is not perfect - but that is how it goes. There is potential for it to get all mucked up if he has to repeat his MIBG scan like he did last time.
Anyway - here goes:
Tues, Jan 4 - 11:30 clinic visit, physical - possibly let them place IV but only if certain nurses are working.
Tues, Jan4 - 2:30 MIBG injection
Wed, Jan 5 - 9:30 MIBG scan
Thurs, Jan 6 - Possible 9:00 MIBG scan (if first one is too bright - this happened last time since he did not have a BM before the scan)
Thurs, Jan 6 - 9:30 Bone Marrow Aspirations (will be pushed to 10:30 or later so if have to repeat MIBG scan and he will have to go even longer without eating)
Thurs, Jan 6 - 2:40 - CT scan. This may be a problem if Bone Marrows are pushed late because he has to be able to eat lunch by 12:40 when he will have to begin drinking his oral contrast for the scan at which point he cannot eat or drink anything until after his scan. If htis happens I will likely rescheudle the CT scan until the next day instead of starving him. He is very very very crabby after sedation and there is no way I could get him to start drinking the contrast right away.
So - anyway - we REALLY need him NOT to have to do the MIBG scan again on Thursday. We'll see what happens.
What else is going on? Well - Nathan is finally over his colds and his nose is again running clear like a fountain due to allergies. We may try some allergy medicines again for him. If you recall, his nose was like this a lot during chemo. We tried some medicines that didn't help, but maybe his immune system has changed again. It is really bad - he has a constant puddle below his nose.
I am looking forward to the New Year...I am praying it is a year of no major medical treatment for Nathan.
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