Monday, December 6, 2004 9:58 PM CST
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Update Wednesday December 8, 2004
I got a message from Nathan's oncologist that the urine test came back all in normal ranges. This is the test that is elevated when there is neuroblastoma present. So - some good news!
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Hello -
Glad you all like the tie. Nathan has been asking us for a tie ever since he saw a child wearing one at the Ronald McDonald House. He was so proud of that tie and he loves wearing it. He would wear it every day if we let him. For all you who have asked - we bought it at Mervyn's - it is Van Heusen and a clip on. The picture was from Sunday morning before we went to church.
We had a very busy but very good weekend. Luke came home late Friday night. Our good friends Max and Myndi and thier boys, Maxx and Miles spent the night Friday night before they flew to Florida where they are moving. We will miss them!
Saturday morning we did the shop with a cop. They had breakfast for everyone and then the kids waited their turn to sit on Santa's lap and get a present. Nathan and Julia had to wait a long time and were very patient. They were very pleased to see Santa and Julia gave him a hug when he put her on his lap. They then got to pick out $25 worth of toys (we were at KMart). Nathan picked out a motorized loader and Julia picked out 2 dolls and some art supplies. I left from there to go to choir rehearsal and they went home to play with their toys. Nathan got an RC moster truck from Santa and so he and some neighborhood kids had a blast driving it around outside later in the day. It was very nice out and Luke and I stood out there with them drinking coffee - it was a very satisfying family time.
Sunday we were off to church in the morning and then we did some Christmas shopping on the way home and ate at my new favorite fast food place - Culver's. I LOVE Steak and Shake and we don't have them here. Culver's is new here and it comes much closer than anything else we have. Yum.
We spent Sunday afternoon decorating the house and putting up the tree. After dinner we decorated the tree. It was so much fun to watch the kids put on ornaments. They both wanted to put the angel up and so we had to lift them both up there.
Luke left again early this morning and the kids and I ran more errands and then I had to go to choir practice tonight. They called some extra rehearsals. There are rehearsals Mon - Thurs night this week, Saturday afternoon and the concerts are on Sunday. Crazy! Anyway - I managed to find babysitters for all but Thursday - and I really didn't try for that because 3 nights in a row is probably going to be more than the kids can handle anyway. It is so much fun to be singing so much though.
Nathan got a haircut this morning. We are so perplexed by his hair. It is either long, somewhat fuller but shaggy and crazy or short, neater but balder-looking. I haven't decided which way I like it better yet. He seems fine with anything as long as it is not sticking up funny.
Well - I think I have covered most of what has been going on around here. I am not sure when my next update will be. Probably not for a week or so unless something comes up. I will try to put some tree decorating pictures on the photo page soon.
Thanks for checking in!
Welcome to Nathan's Cancer Journey
This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.
Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.
I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.
Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.
I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.
Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.
I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.
Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.
I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.
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