Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Friday, January 7, 2005

Friday, January 7, 2005 8:40 AM CST

Well, scans are done but we have no results yet.

The IV insertion went really well and got in on the first try. We checked Nathan's blood counts and he is a little anemic. He had been in the low normal range previously. I didn't get to talk to the doctor about it though.

We had the MIBG scan yesterday morning. Nathan did great in it - it took longer than normal. Different machines and different techs seem to do the test at different rates. This time it was 2 - 25 minute scans. I messed up and brought the wrong kind of DVD that didn't work in the player I brought and so he had to just lie there. He is awesome! I couldn't really see anything on the screen but I didn't really try to look either.

After waiting for about 20 minutes we were told we didn't have to redo the MIBG scans and so we were happy about that. We went off to have lunch and then went to Toys R Us and looked around and I had Nathan take his oral contrast. He had to take it twice, 1 hour apart. IT is milky looking stuff and he used to HATE it, but now could care less about it. I just fill a syringe and squirt it in his mouth over and over again. He did it really well and it was no stress at all.

He had his CT scan and this time there seemed to be a little too much phoning around and they were asking me lots of questions about where his tumor was and so I am extremely nervous about the results. I am hoping to hear something fairly early on today. Meanwhile we have a playgroup at the swimming pool and I am going to try to make myself go even though I am not mentally up to it.

I will update when I know something.

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Update Friday evening:

We have one scan result. The CT scan is perfectly fine. The MIBG scan report is not in yet. I am feeling MUCH better. We still have the bone marrows next week but I am just happy knowing that at least there is not a tumor in his chest. abdomen, or pelvis, which were scanned.

It is a little unusual for the MIBG scan not to be in yet. I had scenarios running around my head today in whcih the doctors had the results and were trying to figure out what to tell us!

Anyway - I think we can relax enough to enjoy our weekend and we will find out the MIBG scan results on Monday.

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