Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Wednesday, January 26, 2005

Wednesday, January 26, 2005 12:35 AM CST

Hello - I really meant to update before now... We have been so busy - in a good way. This past week was spent getting ready for Julia's birthday party. Sprinkled in between was some house projects and a half day spent in bed sick for me and another for Luke and so by Saturday we still ahd a lot of work to do. Fortunately my friends Tonya and Linda came to the house Friday morning and cleaned with me!

Julia's party went very well and it seemed everyone had a good time.



This week the kids have had swimming lessons twice. Julia is afraid of jumping in and so has been a little reluctant about the lessons. She seems to have fun while she is in them. Nathan loves the the lessons and is doing a good job trying to put his face in the water.

Our practically new van is in the shop with a problem. That is frustrating. Especially since the backup vehicle had a sevice engine light on it. I think we have fixed it and hopefully the van won't take too long. It is not very fun cramming us all into a 2 door car.

I went to the dentist yesterday. Lots of my old fillings need to be replaced. I am not looking forward to that. Nathan and Julia go to their dentist tomorrow morning. It will be Julia's first visit. I am going to have Nathan go first and let her watch. I dropped off a copy of the Children's Oncology Groups long-term effects guidelines on teeth with their dentist yesterday. He doesn't belive that his treatments have caused all his cavaties. I wanted to make sure he know what kinds of follow-up care and after effects are commen with cancer kids. If he doesn't respond well to it then I guess I will have to find another dentist. We would have to go to Denver to find a dentist with some experience with chemo kids.

This weekend we have no plans - which is the first for a while. It will be nice to relax a little. We still need to put our Christmas boxes back into the crawl space so that is probably on the agenda.

I emailed Nathan's doctor in New York to see if there were additional tests being performed on Nathan's bone marrow. He is looking into it. Usually they do a very sensitive test on the bone marrow to detect microscopic disease. I will let you know if I hear anything. It has now been three weeks since we started the tests and it is frsutrating that we still don't have all the results. I will probably push off the next round of scans until mid to late April. I think we should get 3 months without thinking about the tests. Actually, we will probably do the urine test again in a few weeks since we have been doing that between scans. That one is not as nerve-wracking as the others. I wish we could just do urine tests every 3 months and fulls scans every 6.

Well - I think that is all for the update this time. I will try to get a new picture of Nathan up on the page and some new photos in the photo album too.

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