Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Monday, January 10, 2005

Monday, January 10, 2005 2:30 PM CST

Well - no more scan results yet. I will update later today if I hear anything.

Nathan and Julia had swimming lessons today. They both did really well and enjoyed themselves thoroughly. They are learning to put their face in the water and to jump into the water (with the teacher catching them). It was fun to watch them.

We had a good but busy weekend. We had dinner at friends houses both Saturday and Sunday nights. Between that, church, laundry and housecleaning, that was pretty much our whole weekend. Oh, and we did get the Christmas lights off the house. We have been having highs in teh 50's and so it has been nice to do outside work.

I haven't heard for sure if Nathan's bone marrow biopsies will be on Thursday. I plan to ask the doctor when he calls with scan results.

I have completed the December family web page. See the link in the middle of the page or at the bottom.

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Update - MIBG scan is unchanged. If the NY docs were reading it they would say no sign of disease. The doctors here say stable. There is a spot that lights up around his surgical site. This has been the case for the past year and the experts in NY say it is just due to the damage from surgery and not cancer. The CT scan shows nothing as well - so for us that means no cancer detected.

The bone marrows are on for Thursday morning. We will get preliminary results fairly quickly but they are sent out to a lab and so it is a week or so until final results on those.


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