Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Friday, July 16, 2004

Friday, July 16, 2004 1:52 PM CDT

Yesterday's clinic visit went fine. The creatine clearance test had mixed results and so we will be going to Denver to do a GFR test which is a nuclear medicine test for kidney function. Nathan previously had this same test before transplant. It involves some timed blood draws and other that him getting an IV not a big deal. We are trying to schedule that for the last week in July.

Nathan's weight is stable but lower than it was when he was on the steriods. I think we will just keep an eye on it. He seems to be eating fine. His blood counts were also stable. He will go back in a month! He did have blood drawn for an immunity panel so by early next week we shoudl have the results and see how is immune system is doing and also if he retained his vaccinations.

Today we have been doing projects around the house...we are so far ehind on things having been gone so often. Tomorrow will also be spent that way and on Sunday we plan to go to a Candlelighters barbeque. Candlelighters is a childhood cancer organization. This will be the first even we have done with them as I have tried and tried to get on their mailing list to no avail but this time I saw a flier at the doctor's office.

On Tuesday my parents arrive and will stay for about 3-4 weeks. On Thursday, Luke and I fly off to Chicago for the Neuroblastoma conference. We are hoping to see a hand full of friends the one night we have off. We won't be able to see everyone with the busy schedule.

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