Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Friday, July 30, 2004

Friday, July 30, 2004 8:04 AM CDT

Hello - hope all of you have had a good week. We have...nothing too exciting going on. Yesterday we went to the county fair. The kids had tons of fun looking at all the animals. They also had some tractors from a dealership there and they both sat in many of them and thought they were very cool.

We had to say goodbye to some very good friends this week who moved away....Daelyn, Eric, Julia, Bo, and Catherine...we miss you already!

A little insurance update....things are finally moving in the right direction and we are in the system and there is someone at the insurance company working on getting the antibodies approved. We also got a glimmer of hope that even if the insurance company itself won't pay there is still hope..I won't elaborate but we are feeling much more positive. I may try and schedule the kidney function test for the week before we go to New York. We leave for NYC on Aug 14. We will be at the Ronald McDonald house this time. I will post the address because Nathan really doesn't like staying there and receiving some cards while he is there might perk him up.

I found out his preschool starts a week later than the regular school so he will miss the first 2 weeks of preschool. I am a little upset about it because no one told me and I might have arranged some things differently if I had known this a month ago. I am sure he will adapt but it will definalte be a harder adjustment for him coming into it with all the other kids established already.

My brother Aaron is coming in today to visit for the weekend. My brother Jason will come down on Saturday. It has been a few years since my immediate family has all been together and so we are looking forward to our family weekend.

On Tuesday, Luke and I leave for Cancun. We will be back on Saturday. We cannot wait to just lay around by the beach and pool for a few days. I am sure it will not be nearly long enough but will hopefully recharge us a little bit.

Nothing new on the medical front. I still haven't heard the results of his immunity tests and I just need to call and ask - so I will try to do that sometime today.

Thanks for reading...sorry the updates have been farther apart lately. They will pik up while we are in New York.

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