Sunday, July 25, 2004 5:42 PM CDT
Hello - sorry for the long gap in entries. Luke and I just got back from the Neuroblastoma conference in Chicago.
My parents arrived on Tuesday last week. On Thursday morning Luke and I headed off to Chicago. The conference was very interresting and informative. We also got the chance to meet lots of families and see some friends I have made along the way.
Last night we were able to have a very fun dinner with some friends and family in Chicago. Thanks to you all for joining us!
So - back to Nathan which is why you are reading this....he is doing fine. He has a little cough and had some bowel trouble last week that seems to be resolved now. He won't be having the kideny function test that he needs next week due to several people dropping the ball and not getting authorizations and scheduling done. Insurance changes the next week and the newly merged company had not even gotten the new people in the system so we can even get an authorization at this point. I can't believe a huge HR department could be so unorganized, especially when they are preveneting their employees from getting medical care! Anyway - I don't know when he will get anything done for the kidney function - maybe we will do it in New York.
This week does not hold anything medical for Nathan (at least not at this point). Well, actually Nathan's oncologist thinks we could repeat the urine test he recently did but I guess I am not leaning towards that because it is just an unneccessary blood draw if we get the same results. I am also getting tired of all of this and when it comes to a struggle to get things scheduled, authorized, figured out I am just surrendering on this one. We'll see if his oncologist calls to figure it all out.
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