Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Friday, February 13, 2004

Friday, February 13, 2004 11:30 AM CST

Susan here...

Well - two uneventful days. Yesterday I wanted to go to playgroup but Nathan told me he was too tired to go and so we stayed home. I drew his blood for the HAMA test. After nap time we went to FedEx to send the blood and then did a little shopping. I found a neat toy for Nathan. It is a console that fits on a computer keyboard and it emulates a construction truck cab. It has a steering wheel, levers for moving the buckets and a horn. There is software that goes along with it and Nathan is able to play on his own. He gets to drive the trucks and dig and do other projects with them. He really likes it. I will put a picture on the photo album page.

Today we played a board game sent to us (Cranium Caribou) and both kids thought it was a lot of fun. We have been just lazing around I suppose. We are looking forward to the three day weekend and being all together. I will probably get out on my own some too.

Oh yeah - a note about the HAMA blood draw - after taling to my friend I realized it isn't clear that I draw the blood right out of his Broviak - no pokes at all - so it was pretty simple.

As far as the eating goes - I think the medicine is helping. He has been eating a little more and he also finally gets that he has to finish something nutritious before we will give him something junky. HE is still doing great with the pills and enjoys drinking Coke.

juliabanana 000_0031

No comments:

Post a Comment

Subscribe to: Post Comments (Atom)