Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Wednesday, February 18, 2004

Wednesday, February 18, 2004 2:51 PM CST

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Just a quick update. We haven't heard anything from the corporate angels and so I had to buy tickets. Due to ticket prices, Nathan and I are leaving tomorrow (Friday) morning for New York.

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Susan here...

Nathan went to the Dr on Monday and his counts were doing fine. He is still having "poop issues" and has been having a lot of pain the last few days. He is done with the accutane but has extremely chapped lips. He started his shot this morning. We have not heard anything from New York so we assume that means his HAMA is negative and he is a go for Monday in New York. No word from Corporate Angels so it looks like we will be flying commercially. We will probably leave Friday or Saturday. I will look at flights later today.

We have been mostly hanging around home and running errands the last few days. The weather has been warm yesterday and today so we have gotten in a little playing outside which has been a nice change. Nathan tires out in about 20 minutes though. All the doctors keep saying that his fatigue is to be expected - but just comparing how he is now to when he was having chemo is discouraging because he was so active during all of that and now he is at his worst. What I wouldn't give to see him run around.

One of the questions I will be asking this time in New York is when will he get more scans done. He has been having the bone marrow aspirations but I would think they would want to do the other scans sometime soon. His last scans were in early December.

So one or two days left at home and off we go again. I am just focusing on getting rounds 3 and 4 finished and then we will get an 8 week break in which to try to live a little bit normally for a while.

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