Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Monday, February 23, 2004

Monday, February 23, 2004 3:32 PM CST

Hello - sorry I have not updated. Nathan and I had a pretty good weekend. On Saturday we went out to the grocery store to stock up and then in the afternoon my cousin Laura came over and we went for some food and hung out. Nathan was having alot of bowel pain at the coffee shop but did ok and we had a good time.

Sunday we lazed around for a while and then got brunch at a nearby restaurant. Later in the afternoon we hopped on a bus and rode down to KMart. I bought him a toy and me a puzzle there. The trip was really about the bus ride - which Nathan thoroughly enjoyed. We picked up some food to bring back and Nathan was quite happy because it included his new favorite - mashed potatoes.

Today started early and we were off to the day hospital at 7:30. He had his finger pricked which is always a big deal and we got his bed but then we waited and waited to get started. We finally started around 11:30. Right about the time we were going to be getting to leave they checked his blood pressure and it was low and so they gave him alot of fluids. After that it was still low and so they gave him some more. His pressure finally went back up but he started crying in pain and his oxygen levels went down. We still don't know why but it finally passed and we arrived back at the apartment around 4:00.

He had quite a bit of pain today - seemed like one of his worst days for that. We saw the doctor today and he is scheduling a full set of scans for next week. Nathan is currently in bed. He was crying in pain a few minutes ago and I went in and his bottom is hurting him. He resisted all attempts to make him feel better and told me he didn't want to feel better and stop crying and so I left him to it and he is quiet now. The last thing I can do after this long day is listen to him scream in my face some more. Hopefully he will rest a little before dinner.

Hopefully I too will get to rest a little!

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