Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Wednesday, February 25, 2004

Wednesday, February 25, 2004 3:18 PM CST

Hi there - I guess I owe you all an update.

Tuesday was better than Monday. His pain was still bad but he had no pressure problems and we got home by noon. During the afternoon he had pain off and on in his extremities. I massaged him for a while - it seems to help. He also had a bath in the afternoon to help his bottom. The doctors are supposed to discuss his bowel pain in their weekly meeting today. We'll see if they come up with anything. I hate to see him in so much pain because of it.

Today was a more normal day for him. He didn't have nearly as much pain or at least handled it well. I was thinking about how horrifying it would be for someone (non-ancer parent or professional) to wander back in the corridor where all these kids are getting antibodies. The screams and moans are really awful.

He will have a cat scan on Tuesday and an MIBG scan on Wednesday (I think those are the right days anyway). I don't have a clue when we will get results but I am hoping we will have them before we leave on the next Monday. He will be having bone marrow biopsies on that day.

We will be moving on Sunday or Monday. My aunt and uncle will be in town and in need of their apartment. I am still trying to decide where to stay. There are several factors I am weighing and will try to decide by tomorrow. Most likely we will stay in the Ronald McDonald house but only if I get my hands on one of those very little fridges (hold about a six-pack) so I can keep some milk in the room with us.

I am pleased that it is Wednesday and this week is half over. I cannot wait until this weekend to get a little break. I will be meeting an online friend from England on Sunday as she and her husband are taking a trip to the city for the weekend. Her 3 year old was undergoing chemo at the same time as Nathan with a different cancer. He is doing well now and in remission.

All is well at home and Julia is doing fine with daycare.

So - one last personal note. There are many of you out there reading who are friends and you are keeping up with what is going on with us - however - we don't know what is up with you - so if it has been a while please email us. I know in my case there are several of you out there I have written emails to in my head as I lie in bed but can't find the energy to actually email.

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