Hello - well I thought today was pretty bad, but Nathan told me a few minutes ago that he had a really good day.
His pain was REALLY BAD. He screamed out in pain for over a half hour and then grunted in pain for another hour. It hasn't been that bad for several rounds. He was really wiped out after that and I was a mess and the combination was not good and I took out my frustrations on him by not being very patient when he was very cranky and screaming on the way home. A while after we got back to the room he told me "Mommy, I wasn't being bad and throwing a fit before, I was just in pain". Boy did that make me feel bad bad bad. It is not as if I don't know that, I am just in such a bad state myself that I cannot react in a calm reasonable way to the screaming. Anyway, we hung around the room and house the res of the afternoon. I was trying to stake out the washer and dryer. Nathan played most of the afternoon and evening. He really enjoyed his playing and was pretending he was a Daddy and he had a baby he was taking care of. He told me the baby threw a fit and the Mommy got make and made a face like " " and he showed me the face and said she had one eye shut and the other open a little and his teeth were kind of bared. He is too funny. Oh, and I am pretty sure I don't make that face - I will have to ask Luke.
So - I have NO CLUE what to expect from tomorrow's treatment. It is as if we are starting over again so I guess I will expect it to be bad. I am hoping we get an early start at least so we can leave the hospital and get on a train around 1:00. We will be going to Garrett's house for the weekend and we are definitely ready for a nice break from all this for the weekend.
I may not update until Monday, I am not sure. Hope you all have a good weekend and Halloween.
(some pics from Central Park Zoo)
(Some pics of the UGLY rooms at the Ronald)
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(plus my sweet boy)
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