Julia completed her IVIG infusion yesterday. It should have been complete about 2:00 am the night they were in the hospital , but someone messed up and didn't notice that the pump switched to IV fluids. They didn't catch it until the next morning so she had to stay longer yesterday while they gave her the rest of her infusion. She felt good most of the day and then her neck started hurting late in the afternoon.
She is on high doses of aspirin every 6 hours. It has been a struggle to make her take it. Even worse, her nose is bleeding. It bled some in the night and stopped. It has been bleeding for 1 and a half hours this morning with no signs of stopping. I am waiting to call the doctor when the office opens.
At least we are home....
I'll update again later.
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1:50 pm MDT
Julia's doctor managed to get her nosebleed to stop and so far it hasn't come back. I am sure it will at some point, but I feel more comfortable with being able to stop the next one. She is currently feeling well and she and Nathan and playing very nicely together. It is clear they missed playing together. They are wonderful playmates.
As for Luke and I - boy we are in extremely rough shape. I don't think I could adequately describe it, but we are definitely on the brink of emotional and physical collapse. We really need at least a week of no drama around here to even begin to recover.
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