Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Monday, April 4, 2005

Monday, April 4, 2005 8:11 PM CDT

Well - we've been to the hospital - but this time with Julia. She has had a high fever for 5 days, very red eyes, various rashes, and a sore neck. I took her to her pedaitrician on Saturday and she said Julia had a virus. He neck started hurting badly yesterday afternoon and so I took her to urgent care. The doctor there was concerned it was Kawasaki's disease. We spent the rest of the night in the ER, where the doctor was also concerned. They admitted her and the doctor in the peds ward was convinced it was just a virus and sent us home. So - we are in a kind of bad situation where we are not sure what is wrong with her. If it is Kawasaki's disease, early treatment is important to prevent life-threatening heart problems. So - we are quite uneasy about this. She still has a fever and a sore neck but her other symptoms are subsiding. She will have some blood work done tomorrow and then go see her pediatrician.

I hope things become clearer for us between now and then.

Nathan is just fine - if it is a virus - he and the rest of us don't have it. It was so strange doing the hospital thing with Julia instead of Nathan.

I'll keep you updated.

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