Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Monday, April 11, 2005

Monday, April 11, 2005 7:53 PM CDT

Hi - sorry I didn't update sooner. Julia is doing just fine. She has had no more nosebleeds and other than being a little more tired than usual is almost back to normal. She is much better about taking her aspirin. She has to have it every six hours which mean she has to be woken up for it and then also take it right when she gets up. Tomorrow she will have blood drawn and Wednesday morning she will see the cardiologist. She is still at risk for developing coronary artery anneurisms and so I am guessing they will do a follow-up ultrasound.

Nathan is doing so well. About 6 weeks ago he got sick and then he developed the transient synovitis and during that period of time - he really had a lack of energy. Well - he has totally rebounded from all that and had load of energy and looks so well. It is wonderful to see him like that.

We had an actual blizzard yesterday. Today the kids went out to play and had lots of fun in the giant drifts. In true Colorado fashion - it will be in the mid-sixties tomorrow and so the foot of snow or so will all be gone very soon.

After Julia's Dr. visit on Wednesday we should know if we can go to Florida or not. Keep your fingers crossed for us - the kids are so excited about going (as are Luke and I) and we could really use some good news and fun.

Thanks for all the support and emails. I haven't been able to get back to all of you who emailed but I so appreciated it!

As far as Nathan and doctors - he is due for more immunizations and a check up with the hearing aide doctor. Luke and I are undecided if we will have him do an MIBG scan and CT scan soon, or if we will elect to wait 3 months and do the whole shebang. We are very reluctant to have more scans and tests right now.

Well - that's about it - I will update on Thursday about Julia's visit.
So - I will update again

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