Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Wednesday, April 6, 2005

Wednesday, April 6, 2005 3:49 PM CDT


Luke here. Susan would update, but she is in the hospital with Julia. Yes, she was readmitted this morning and is being treated for Kawasaki Disease. She went and got blood work and then was seen by the cardiologist. He decided to admit and treat, but told Susan he didn't think she had KD, but that he couldn't rule it out and with the potential side effects to the heart if it goes untreated, he basically has to treat if cases get to him. So, no one really thought she had it, but there was enough uncertainty to treat. The pediatrician at the hospital that was completely convinced she didn't have it, told Susan that she just might actually have it when her blood work came back early this afternoon. Her platelets and sed rate (non specific inflammation indicator) were continuing to climb. Her platelets are getting especially high, which is a major piece to diagnosing KD.

So, she will receive a 12 hour infusion of gamma globulin (purified antibodies) and high doses of aspirin to reduce risk of the heart problems. Susan is with her now at the hospital. I'll be taking Nathan down after work and then after we spend some time together, Susan and Nathan will come home and I'll have the night and morning shift. She *should* come home tomorrow and apparently if this is KD, or even just a simple infection, the IG infusion should have her feeling much better very shortly.

Ugh.

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