Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Monday, August 1, 2005

Monday, August 1, 2005 2:42 PM CDT

BREAKING NEWS!!!!

We got a call this morning from the oncologist in New York and he said that since the MIBG showed something they wanted to at least go in and take a look and he said they could actually do the surgery on Wednesday.

So - I ran Nathan over to the clinic to check his counts and his plateles were a nice number and the surgery is a go. We will be heading out first thing in the morning on a private jet - with a stop in Columbus, Ohio. We are going through an organization called Flight of Hope. The founders of this non-profit sing in choir with me and approached me when they heard about Nathan. Amazingly they were able to drum this up for us on no notice! We have to get into the clinic in New York for some tests tomorrow afternoon. We will be cutting it close but will be in contact with the surgeons office when we land and will go straight over there. So please send good weather vibes our way - if he does not make it in time the surgery will be cancelled.

Julia will be at her babysitters and Grandparents will be on their way to take care of her while we are gone.

The surgery will be first thing Wednesday morning and we will try to keep this site as updated as possible.

We have no idea where we will sleep tomorrow night - but I imagine something will work out. The Ronald McDonald House has been full as late. I have a call into the social worker to see what the deal is.

We are very happy this worked out - a little more notice might have been nice!

No comments:

Post a Comment

Subscribe to: Post Comments (Atom)