Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Saturday, August 6, 2005

Saturday, August 6, 2005 5:44 AM CDT

Well - we did get moved back to Memorial Sloan Kettering yesterday around 5:00. The end of the day was not as smooth as the beginning because Nathan started having diarrhea. It was frequent and so painful to be lifted around and then his bottom has become very sore as well.

We took the tunnels to the hospital instead of an ambulance so Nathan was quite sad about that but he got over it. It was really sad to see him be so upset because it was the one thing he was looking forward to in all of this.

He was up quite late last night because I noticed his tummy had become quite distended and he had a warm red patch on it as well. They took him down for an x-ray (which was not fun with all the moving to and fro). From what I understand his bowel is swollen from starting to work again. It looks better this morning.

He had been on a clear liquid diet and they changed it so he wouldn't eat until they figured out his tummy situation. I haven't heard this morning what the plan is. He was enjoying eating the few food he could yesterday so I hope it is OK for him to eat them again or his is going to be very unhappy.

We don't expect to find out anythign about future treatment until next week. Being the weekend, we will not see any of the main doctors.

We will update again later.

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