Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Wednesday, August 31, 2005

Wednesday, August 31, 2005 7:48 PM CDT

/* Friday 8am
Luke here doing a short top post. Nathan had his CT scan yesterday. He did great, as always. It is almost not worth mentioning anymore. He just automatically goes where he needs to go and does what he needs to do. We are, of course, a little nervous any time we do the "scan thing" and appreciate everyone's well wishes. I don't know if we will get a preliminary report today or not. We will post information when we get it.
*/

Nathan started chemo yesterday afternoon and is doing just fine. So far there has been no nausea or diarrhea. I ran around yesterday trying to get a special adapter for his inhaler. I wasn't able to get it until today - but Tammy, our wonderful day care provider ;) - had one for her daughter and so she showed us how to use it. It didn't go to well because Nathan didn't really get the idea of taking a large breath in. Today I was just way to tired to attempt it again and so I am waiting for Luke to help since he has the expertise the the whole thing.

Last night after leaving the kids at Tammy's I went to Nathan's back to school night. It was really informative and I was happy I made the effort to go. I am really impressed with his school, teacher and curriculum. He has 26 kids in his class - which seems like WAY too many for one teacher but somehow he does seem to be getting the attention he needs. I think he is fitting in OK with the class. He has had a few instances of kids pushing and that kind of thing - but also relates conversations he has had and one mom told me how much her son likes Nathan and that the day Nathan had to leave early her son was crying about it when she picked him up. So all in all it seems to be going just like Kindergarten should. I have been trying to set up a playdate with a boy in his class but with him starting chemo again this week it has not been able to happen yet.

Tomorrow is the Cat scan. I will have to go give him his oral contrast at 11:00 at school - but I am glad we were able to arrange it so he didn't miss any school.

Well - I really need to get the kids to bed. I just called for them and heard Julia saying something like "I'm not going anywhere right now!" in a very SNOTTY voice. So - it looks to be an unpleasant bedtime......

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