Update - Wednesday August 24 4:58 PM MDT
Nathan woke up feeling much better this morning and I sent him to school. He had no problems at school and his cough is better. I took him to the clinic and the doctor thought his lungs sounded a little bad and so we went downstairs for an xray and he definately has something going on there. Who knows if it is viral or bacterial - but he has now had two rounds of IV antibiotics - so if it is bacterial it is being covered. He feels so much better today though. I am also glad there is a possible explanation for his fever yesterday - cancer kids and unexplained fever are not a good combination.
As far as the leg pain - the doctor wants to wait a little bit and see what happens. It seems to be right at the muscle and so a strange place.
If he continues to do well then he will not go back to the clinic until Monday. So - crossing our fingers!
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Well - I jinxed myself about the clinic because we were back today and will be tomorrow too. This morning Nathan was very tired when he got up. We figured it was from coughing a lot in the night. I cajoled him into going to school. I got a call at 9:30 that he was in the nurse's office and his leg hurt. I talked to him and asked him if he wanted to go back to class or for me to come get him. He said that what he wanted was for me to make it so he could have tylenol at school when he needs it. Then he said he would go back to class. They called again around 10:30 and his leg was hurting again so I went and got him. He had apparently not participated in anything all morning and after sitting on a basket in the gym watching the kids play it started hurting again.
I brought him home and he really seemed to just be tired. He was walking fine and not limping at all. I could move his leg any which way without it hurting. The place where his leg hurts is the top fo his right thigh- a weird place. Luke was finally able to isolate it. It didn't seem to be bothering him anymore unless we really pushed on it.
I had them have quiet time in ther beds and Nathan did fall asleep. When he woke up he had a temperature of 101 so I took him to the clinic. When we got there it was back down. They took blood cultures and gave him an antibiotic. His cough is still bad but his chest still sounds clear. They want to keep listening to it though. His white blood count is high indicating that his body is fighting off something. His temperature was back up a little bit before bed.
The leg thing - which is a separate issue - will be decided tomorrow. Nathan's regular oncologist was out but the other one thought that since he is so high risk we had probably try to figure out what is going on. The reality is - it is likely just either a bruise, pulled muscle, etc or it is a tumor in the bone or bone marrow. His last MIBG scan was 2 months ago and the reality of this disease is that it could come on that quickly. Now that he has relapsed - we have to be even more concerned that every little ache and pain is the cancer. So much for all the positiveness you guys have thanked me for! But really - I literally take things day by day. I don't know what Nathan's future holds - but I don't know anyone else's either and I can't live life worrying about it. I have done enough of that to know when it is time to worry (like waiting for results) I will, the other days I need to push it out of my mind because it isn't going to do any good or to change anything - just ruin my day.
So - we'll see what tomorrow brings...
On a different topic - Julia had a really good time at preschool today. When she came home she was so happy. She hasn't been so happy lately and so it was wonderful to see her that way and obviously a very good thing for her.
I'll update tomorrow.
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