Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Friday, September 16, 2005

Friday, September 16, 2005 9:37 AM CDT

Hmm - I gues I forgot to update yesterday - sorry!

Nathan's counts are still low. His platelets and hemoglobin were only very slightly up and his ANC (immunity) was a little lower but still OK at 1100. So - we will definately not have chemo on Monday. There is still no word from the doctor in NY so we are still in the dark about things. Since his counts haven't come up it doesn't hurt anything that we haven't heard - but it is frustrating to not know what the next step may be.

I took Nathan in for his bone scan injection this morning and we will go back in a little while for the scan. There will be a screen where I can see what is on it - but I am not that familiar with a bone scan so I don't think I will try to interpret it. Hopefully the results will be available on Monday when Nathan goes back to the doctor.

Nathan's weight was up about a pound - so I am pleased about that. He definately looks a little bit better in that department.

On Wednesday evening we all went to the church. They have dinner and programs and we had asked the kids if they were interrested in kid's choir and they were. I went to my choir rehearsal and Luke went to a class. Both kids seemed to have a really good time. Unfortunately it keeps them up quite late since my rehearsal isn't over until 8:30 but they keep the kids and let them play. They went straight to bed and so it seems to have worked out fine.

My doctor's appointment went fine. I didn't appear to grow any since the last appointment - but am still in the normal range - plus those measurements are anything but exact. If I still show now change next week then they will look into it. The baby is quite active and is head down so everything seems good there. 10 weeks or so to go. Luke and I need to come up with some names for this child!

So - I think that catches us up. Check out the view photos link for more new pictures.

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