Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Friday, September 9, 2005

Friday, September 9, 2005 7:41 AM CDT

TGIF!

Nathan went to the clinic yesterday and we were happy to find that his platelets went up and his ANC stayed around th same - which is a number that is fine for his immunity. He hemoglobin dropped a little - but not into transfusion range and he does really well with low hemoglobin so we are not going to worry about the weekend. Hopefully it will bounce back up since his platelets are coming up. His doctor wasn't in so we didn't find out if he has heard anything from the doctor in New York. Nathan is still coughing some, but his lungs sound clear again. We are giving him the inhaler when the coughing gets bad - but have no feel for why he is coughing. His leg pain seems to have gone away again. I couldn't get his bone scan scheduled until the 16th - so we still have to wait a week for that. We did collect his urine yesterday and they did some blood work that, if elevated would indicate a problem - though the problem could be cancer or some other medical problem so we would have to start looking. I imagine we will find out the bloodwork results on Monday.

Tonight Luke and I are going to a banquet for my choir and tomorrow night the whole family is going to the zoo. It is a special program of some sort for pediatric oncology patients. That is about all we know about it - but I am guessing we might get to do some things there that people normally don't get to do - so we are hoping it is fun for the kids. I am a little worried about getting around. Our zoo is built into the side of the mountain and has very steep hills.

Well - that is about it for goings on here. Hope you all have a good weekend.

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