Another Update: Wednesday September 28
Happy Birthday, Susan!
Today we are celebrating Susan's birthday. I don't have to tell you all how amazing Susan is. You know from reading her words here on Nathan's site. Susan is the most amazing mother, wife, and friend that I could ever imagine.
This is the second "top post" of the day. Please make sure and read Susan's short note on her and Julia's doctor appointments right below this.
************************************************
Update: Wednesday September 28
Just wanted to say that Julia's heart is perfectly normal! She'll go back in a year and then 5 years. My appointment was fine. I did gain some weight and a centimeter. The baby sounded fine.
************************************************
Another week - counts still about the same.....
The good thing is that his hemoglobin was up a little. Usually it is up on a Thursday (after medication to boost it on Monday) and then down on Monday when he receives medication again - so it was good it was up a little on a Monday. His ANC is again 800 - so slightly neutropenic but is doctor doesn't think it will drop more...we are not checking counts again until next Monday - so I hope he is right. His doctor is not worried that his bone marrow is shutting down - he feels it is just very sluggish and is coming up VERY slowly.
Nathan got a flu shot. He was unhappy at the prospect but as usual handled it like a pro. There is a chance the shot won't even work since his immune system is supressed and may not actually make the antibodies against the flu - but his doctor felt it was worth trying.
We talked about scans and we will probably do the full set in a few weeks. Luke and I have gone back and forth about doing them in NY or not. We feel that they have more expertise. However - we think we will likely do them there in a few months anyway and so I think we will do them here. If (when?) we have the expected ambiguous results the onyl answer would be to rescan to see if anything changes anyway and we can do that in New York. His local doctor will confer with the NY doctor about what scans are needed for the trial and we will make the final decision about when to do them. At this point it has been 3 months since MIBG, 2 months since bone marrows and a few weeks since CT scan. We will go ahead and do them all (and the urine test) to get back on track. Let's see - what else...Oh - his weight is back up! He is back to 40 pounds and so we are feeling good about that.
We had a good weekend. I went to the spa - thanks again to whomever sent me the gift certificate. It was wonderful! Luke and I also went out to dinner. We worked on boy names but didn't make too much progress. We did settle on a girl name (Jude H....we have a policy of not sharing our baby names until the baby comes out..sorry!). It was nice having a leisurely dinner together.
I go to the doctor tomorrow and am just hoping to hear that I have grown a little since last time. I didn't have any growth between my last two appointments. I am not too worried - but a little bit. It doesn't help that people left and right are telling me how small I am for being as far along as I am. At least the last person who made a comment said I was carrying well - I much prefer that! I have been starting to buy the needed baby things...8 weeks left! I can't believe it!
Julia also goes to the doctor tomorrow. She has a follow-up echocardiogram. They are just checking another time to see if she has any heart damage from the Kawasaki's disease. It is highly unlikely at this point. After this one I think she won't be checked again for a year or two. She is happy about getting to go to the doctor and Nathan needing the babysitting! Though she did ask if she could stay and play after she was done. She gets along SO well with Tammy's daugher.
So - that's it for now...it will be nice having only one clinic trip this week.
No comments:
Post a Comment