Tuesday, September 20, 2005 8:16 AM CDT
I have to start this entry today celebtrating the beginning of our wonderful family - on this day eight years ago Luke and I got married in a little white chapel in Annadale Virginia.
Now to the medical...
Nathan's bone scan came back clear. He also seems to have stopped having pain in the leg for now. His counts are still tanking. His platelets were up a little but his ANC was only 700 which is getting close to the level we need to keep him home. His hemoglobin was also lower but not in transfusion range. We opted to give him so neupogen to up his white count even though it may stall out his platelets. I don't want him missing school when he feels so good. His doctor is now wondering if when we started round 2 of the chemo and his counts were so great perhaps they still were going to drop and so we really hurt them by starting chemo again so soon. Whatever the reason he will not have chemo this week. We heard from NY that the vaccine trial is at least 6 weeks from opening and so the chemo will continue for now. I am hoping we can actually start the trial after the baby comes if not after the holidays. I will have to find out how time critical it all is. So - Nathan goes back to check counts on Thursday.
We had a very nice weekend. We had a pass we got from Give Kids the World that allowed us to go to other parks at no cost for a year and so we used it to go the the Royal Gorge (about an hour and a half away). First we stopped at a park that let us ride a ittle train to view the gorge and bridge and then we went to the gorge and rode the carolsel, the incline down to the bottom of the gorge and walked out onto the bridge. It is the world's tallest suspension bridge.
I must run off to get Nathan on the bus - I will update again on Thursday.
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