Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Monday, October 10, 2005

Monday, October 10, 2005 6:39 PM CDT

***************************************
Update Tuesday, October 11, 2005

I just wanted to update that my appointment went fine. Everything is exactly where is should be as far as size, weight gain and the baby's position.

Nathan is doing well with the chemo so far. We woke up to him screaming this morning. We thought he had gotten sick but he was upset at Julia for having left their room before him. Luke layed down with him and Nathan had lots of questions and comments about chemo and his doctors. He seems to be working through some emotions about starting chemo again. I am sure he is wondering how much more he will have and what will happen next but we don't have an answer for him. I have told him that we are waiting to hear when we are going back to New York - but I think that is unsettling that we don't have a plan and that he does not know what is coming next for him. Unfortunately there is not much we can do for him. After he and Luke talked for awhile Nathan perked up and said he was going downstairs to get his milk. So I think he felt better getting some of his thoughts off his chest.
***************************************
Chemo has finally started. Nathan counts were up just enough to begin chemo. This time he is getting 80mg of the drug that supresses counts. The first time he got 100mg and the second he got 120mg, thinking that the 100mg could have been too low. Hopefully this 80mg dose will not keep him down for more than a couple of weeks - instead of 6!

Nathan's weight was up again and he is really looking robust (just pale!).

I thought I'd share a picture of the fun thing the kids got to do today....

The funny thing was that when we got downtown (8 miles away) to the clinic there was no snow there at all. We always get a kick out of the weather in Colorado. This was fairly late for our first snow and it was quite a big one.

Nathan's school was on a delayed start - he could have gone in for 1 hour of school but I kept him home. He and Julia were having such a good time playing this morning and I decided to let them play and avoid being out in the weather.

Nathan will have chemo at home the rest of the week in te afternoons and go back to the clinic next Wednesday.

There are teacher conferences on Thursday and Friday so no school for either child. On Thursday they will go to the sitters for the day. This is mainly because Tammy's daughter is out of school too and they all have such fun playing and Nathan gets to go too - which dosen't happen very often anymore. Not that I mind the free day....there won't be too many more of those before the baby. The last time Nathan realized I would have free time he was worried I would be lonely without him and Julia. I tried to gently explain that I enjoy my free time! I do have a conference with his teacher Thursday afternoon. I also have a doctor's appointment for myself tomorrow morning. It is just a routine check - every 2 weeks now. I may need to send them to Tammy's tomorrow since I suspect schools will be delayed tomorrow too so I won't have the time with them at school and I am not sure I would want to bring them with me to the doctor.

So - I am keeping my fingers crossed that Nathan tolerates chemo as well as the prior rounds. I'll update later in the week.

There are new pictures for September on our family page - see link above or below.




at the clinic - in exam room

at the clinic - in exam room

No comments: