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Update - Thursday afternoon...
I was expecting this and I can't tell you why - I had been having thoughts that Natan's urine sample would somehow go wrong and we would have to repeat it. I don't normally think this but I really have been expecting it this time. So - I just got a call from the lab at the hospital that they messed up his sample and it is ruined. The woman was very apologetic and I could tell she had gotten a reaming from the clinic staff and also that they must have told her she would have to break the news to me.
Instead of being mad - I am just resigned to it - I just knew something would go wrong. I am not usually that type of person but I guess I had some kind of intuition this time. Anyway - we will not be redoing it any time soon. He is due for other scans soon anyway and so let them do those if they really want to know his status. I have recently been swinging back to wanting him to have some scans again to see where his disease stands. So - I will talk to his regular onc when he gets back and we'll see what he wants to do.
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Nathan had his weekly appointment yesterday. His counts are great - very similar to the week before. So - this leaves us wondering what they are doing. Have they gone done and back up? Are they still going to go down? Will they remain unffected this time? He is due to start chemo on Monday. He will go get his counts checked. If there are signs they are going down then he will not start it. If they are still good he will start another round. It is kind of nerve-wracking to think of starting another round without knowing what his counts have done - but it doesn't make sense to delay the chemo waiting to see if his counts will stil go down. If they are still going to go down it is most likely we will see that by Monday; which is 3 weeks from the start of the last round. I have no idea where the time has gone since that seems like it was just last week or something.
He gave a urine sample for the test that detects neuroblastoma. We were so glad to get that over with. It caused Nathan some emotional distress this week. His foods were so restricted that we had trouble feeding him. In the past it has been no big deal and he hasn't really realized it. Now that he is in school we had to tell him about it to try to keep him from eating other food in school. We also had to try to find a snack without vitamin C, vanilla, banana and chocolate to send with him to school. He likes to bring fruit so that was hard. So, basically since he knew of the restrictions this time - he let himself get all upset about it. It was quite a pain. I pinned a note to him on Monday for his teacher. Apparenty she sent them to library and they had M & Ms for a lesson on patterns. His teacher walked in right when the library teacher told them to go ahead and eat them. Nathan had only had one - but it was upsetting to him and his teacher was a little frantic I think. So - like I said before - we are SO happy to have that over with for the next 3 months or so. We should have results sometime next week.
Julia has her school halloween party today and Nathan has his tomorrow. Julia is a unicorn and Nathan is a fireman. They have had a few opportunities already to do some things in their costumes and they are very cute. I will post pictures from Halloween next week.
I had my appointment - all is well with the me and the baby. I will go back next week. I got the paperwork about going to labor and delivery and am free to have this baby whenever he or she wants to come. I am hoping for the week before Thanksgiving. Julia and Nathan were both about a week early so I would really like the same to happen this time. I have had two very vivid baby dreams this week and the baby was a girl both times...so maybe a girl? We'll see....
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