Sorry for the delay in updates - we have been pretty busy the last few days.
Nathan went to the clinic yesterday (Wednesday) afternoon and his counts are really good. The chemo definately hasn't affected them yet and they have definately been recovering. It was a relief to see them all at almost normal ranges. His doctor commented that THIS time we wil for sure wait the full two weeks at least before we start chemo - I think he is pretty convinced he made a mistake starting Nathan on round 2 early and that his counts just don't drop right way with this chemo.
His sed rate was back to normal. This is the last test to fall back to normal that shows inflammation. It had been still too high three weeks ago. So - whatever it was that was affecting his thigh did seem to heal. We'll never know what that was about. We could do without these mysterious things.
Next week they will send off his urine to look for neuroblastoma markers. Monday and Tuesday we will have to carefully monitor everything he eats. It is so hard to remember all the restrictions (vanilla, banana, vitamin c, and there's more - I always have to look it up) but until you do this you don't realize how many food items have these things in them! His doctor will be gone for a conference next week. He is going to try to catch Nathan's oncologist in NY (who should also be there) and see if he can learn anything more about the vaccine trial.
As far as non-medical - things have been pretty good. Monday we took it easy and just hung around the house. I think Julia was bored - but I knew the rest of the week would be more busy and so I didn't want to go out. Tuesday, Nathan, Julia and I went for a playdate at a classmate's house. I managed to keep Julia somewhat occupied so that the boys could get some time playing without her. Next time he will go alone. He also had a playdate this afternoon at a different classmate's house and I just dropped him off. Julia was VERY upset. She has been having a hard time again lately and her brother going off to play without her was about the worst thing she could imagine. The flip side is she and Nathan have been fighting so much that I knew she would actually be happy to have some time just with me. She and I colored and painted the whole time. Julia seems to be having some emotional problems again and we are at a loss at how to help her. She is purposefully nasty or does things just to make others mad. When she does it to Nathan he walks away and tells her he won't play with her anymore - a which point she gets hysterical crying "I want my brother!" It is as though she is determined to be miserable and make others around her miserable and get negative attention. Anyway - things are only going to change soon - so I guess we'll see how it goes...
As far as I go - well - I guess I am just 8 months pregnant and all that goes along with that. I am just in that large uncomfortable stage (even if I don't look huge -my body thinks I am!). I played tug of war with my wedding rings in the middle of the night the other night and they are now off for a while. With Nathan they came off way early and with Julia I never had to remove them at all. It is all temporary and only a few weeks left. I go back to the doctor on Tuesday and will be going weekly from then on.
Lastly - but not leastly - there is Luke - but since he is neither myself nor my child I do not feel it my place to try to describe what he is up to - other than work as usual. He did take a day trip to Utah on Monday, but that should be the last of his traveling for a long while. Maybe he will chime in sometime - with me doing most of the medical stuff this website has turned into something that seems to be my domain - but perhaps he will chime in sometime if he has the desire.
Thanks for checking in on us...we appreciate it.
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| in playroom next to clinic |
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