Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

4/15/03

Tuesday, April 15, 2003 5:24 PM CDT

 

Hi - Susan writing this....

Nathan had his transfusion, red blood cells and platelets today. It was almost 5 hours at the clinic. It makes for a long day. Since he got back from the hospital we have been at the clinic every day except the weekend. Tomorrow he won't go to the clinic but will be injected with radiactive dye for his MIBG scan that he will have Thursday morning. They will have to inject the dye through an IV - so that will be hard for Nathan.

 

We are having trouble getting Nathan to drink enough. Bribing him isn't even working. He has also lost some weight and is about 30.5 lbs and about 40 inches tall...very skinny.

 

Nathan has had a cough for a few days. He is on antibiotics to ward off an infection. If he has a fever of 101.5 or more while he is neutropenic (white blood cells less that 500) it is an automatic 3 day stay in the hospital. This will most likely happen a few times during chemo but we are really hoping it won't happen this first time. He does so much better at home and having him in the hospital would set him back mentally I think.

 

He is helping his Grandma Kathy bake muffins right now and is walking around...so that is great.

 

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