Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Sunday, April 20, 2003

Sunday, April 20, 2003 7:55 PM CDT

Susan here...

Nathan is Home! He came home around 5:00 today. His temperature stayed down and blood cultures were negative and so he got to come home. He will still be on the supplemental nutrition (TPN) as well as an antibiotic, antifungal, and a few other medications. He is still refusing to eat or drink due to mouth pain. The doctors hope that will be better by Wednesday. Unfortunately Nathan has a long memory and will probably refuse to eat even after his mouth has healed until we can convince him to try again.

His blood counts are just on their way up. He will get more blood drawn tomorrow at the clinic and hopefully they will have gotten even better. He had to have a blood transfusion today. He has had five of them in 16 days! Those of you wanting to do something for Nathan but are so far away can consider donating blood. I can't tell you are much we appreciate blood donors right now!

Well - time to start getting meds ready for Nathan before bed. He is getting bad about oral medications. He used to love them.

No comments:

Post a Comment

Subscribe to: Post Comments (Atom)