Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

Tuesday, April 22, 2003

Tuesday, April 22, 2003 7:58 AM CDT

Susan here...

Nathan had an OK day yesterday. We got to stay home until 2:30 when we had to go for a check-up at the clinic. That was nice for a change. He had his blood drawn and we were disappointed to find that his blood counts have not yet rebounded. I am really wanting to get him out of the house and visit with his friends because he is so down.

We got the results back from his MIBG scan over the phone. No big surprises as to where the cancer is located (tumor in abdomen, and spread to the bones of the face, pelvis, upper legs, lower legs, upper arms). There is some in his upper arm bones which we did not expect but there was only the one tumor in his abdomen. We already knew the cancer was widespread but it is still hard to hear the cold hard facts. We will get the written report when we go back to the clinic on Wednesday.

So today we will just hang around the house and I will try to get him to play or do something. He really just wants to sit and watch TV and will not walk or stand.

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