Welcome to Nathan's Cancer Journey

This blog is a reposting of Nathan's Caringbridge page which we updated throughout his battle with Neuroblastoma.

Nathan was born on June 16, 2000, diagnosed with Stage IV Neuroblastoma on April 1, 2003 and died on July 29, 2007.

I have posted the journal here to make it easier to look up by date and also to be able to easily add pictures to the journal entries.

Some of the pictures go along with the text, but many of the pictures you will see were pictures taken on the same date the journal was added, even if the pictures have nothing to do with the text. In the future I may add additional journal entries to go along with pictures to add more explanation/memories.

I am just getting started posting the years of entries and so this will be incomplete for some time. I hope to eventually also post the guestbook entries by date as a comment on the post.

4/18/03

Friday, April 18, 2003 8:49 PM CDT

 

Susan writing....

Tonight Luke is at the hospital with Nathan. He has had a rough day. He is very sad to be at the hospital. He is also in pain because of his mouth sores. He is on morphine as needed for the pain and is refusing to eat or drink as well. He has been on IV fluids all day and will be receiving supplemental nutrition tonight. He had a blood transfusion today as well as antibiotics. The doctors don't think his mouth looks all that bad so I can't imagine how he will feel when it gets even worse.

 

At the earliest he will go home Sunday. He needs to be without fever for 24 hours and have his pain under control. His white blood cell counts should go back up soon. The doctors say maybe Monday - I am hoping for a little sooner so he can heal a little and feel better. We feel so awful as he sits in his hospital bed and throws a fit beause he just wants to go home. It is hard to believe we have only barely started this journey because we have heard how much harder it will get and it is already so very difficult. We will all feel better once we get him home.

 

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